Friday, June 26, 2009

Busy Week

David & Jennifer celebrated their 4 year wedding anniversary last week. Congratulations! Happy Anniversary! I love you guys! I am so proud to have you in our family, David! I almost can't remember you not being a part of our family!

The Dierkings have had a very busy week this week. They had 1+ appointments every day this week in St. Louis (1 hour drive 1 way) between Jennifer & Kacyn.

Kacyn had an appointment with the neurologist. The neurologist thinks his eye fluttering & looking hard to the left may be slight brain seizures or it could be erratic brain activity. The neurologist wanted to go ahead & start him on anti-seizure meds, but David & Jennifer made the decision to hold off on this until Kacyn had his EEG this week. They were afraid the meds would make it incorrectly appear that he wasn't having seizures on the EEG. Please pray that Kacyn's EEG this week was normal.

Kacyn also had an appt to get new splints for his hands & feet.

Kacyn continues to grow! He is now approximately 19.5 pounds. His head has grown another 1/2 inch in the last couple of weeks, but his soft spot still appears to be ok. As long as his soft spot is still there the dr's don't think there is any pressure being put on his brain. His head measured 46 cm. Jen's head measures 48 cm. But David said big heads run in the Dierking family!

David was hoping they could have Jen's feeding tube removed. This is used only to give her her meds because she hasn't been able to swallow pills. The dr doesn't want to remove this yet because Jen still has difficulty drinking water unless it's thickened. Until she is able to drink water that's not thickened, the dr doesn't want to remove the feeding tube. They are looking at possibly after summer being able to remove this.

Jen had therapy this week along with appts with some of her drs & for an EEG also. She had her EEG yesterday. They are trying to determine if the times she passed out in therapy were seizures or due to lack of oxygen because her lungs are still weak. Her primary care physician thinks it's just her lungs, but they need to make sure there isn't any seizure activity going on in her brain. Please pray that her EEG is normal.

David has taken Jennifer to a friend's house to swim in their pool a couple of days this week. Jen really enjoyed this. She is also doing pool therapy as part of her physical therapy.

Please pray for David's dad. He is having surgery in Aug. Suspicious cells have been found in his thyroid so they are removing it. There's a 30% chance it could be cancer. With his history of cancer, they aren't taking any chances. He will need to take radiation pills if it's not cancer & chemo if it is. (Or at least that's how I understood what David told me...) Please pray for Bob.

I apologize for not posting more frequently, but there's really not a lot to report on on a daily basis anymore. I will probably only be posting once a week going forward unless there is a need to do an additional post.

Please continue to pray for this little family. They are getting better, but things are progressing very slowly & they still have quite a ways to go. Also remember to pray for Bob & Kathy as Bob faces surgery soon & Kathy continues to care for those precious little gifts from God for Jen & David.

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