More Tests for A Little Boy

Kacyn was awake all day yesterday & several times during the night! A lot of the time when he was awake he was smiling & coo’ing at Grammy!

They’ve put an iv back in him. This is so they can get anti-seizure meds in him quickly, if needed, since they cut his phenabarbitol anti-seizure meds in ½. The iv will also be used to sedate him for his MRI tomorrow.

He is undergoing a multitude of tests again today. They took blood for more blood tests this morning. Poor little guy may need a transfusion if they keep taking blood from him! Grammy says he looks like a pin cushion!

I have added a link to a video that David's mom, Kathy/Grammy, created. It shows how the lives of so many people (especially David's, Jennifer's, Josiah's, & Kacyn's lives) were changed forever in just an instant.

Thank you for all the prayers & support! Unfortunately, prayers are still needed & I have to ask that they please continue! Please continue to pray for my sweet baby nephew!

Jen still needs prayers too! She is fighting pneumonia & was running a fever yesterday. Her lungs are still very weak so pneumonia is a very scary thing for her to have. Please pray for her lungs as well as her brain. She is still trying to recover from her brain damage & learn to walk & get her other motor skills back.

The Latest

Grammy told me Kacyn was awake more today than he has been the last few days put together. She said he would smile & coo at her! I can't wait to see that beautiful little smile & hold him again!

Please continue to pray for little Kacyn & Jennifer & that whole little family!

What a little trooper!

I have posted a pic of Kacyn that was taken this morning. He was wide awake which is a good thing! You can see his big beautiful blue eyes - yes, he has blue eyes! He gets them from our dad or Pop-Pop as Jo calls him!

In this picture he's in his EEG head wrap, warming blankets & has his iv & feeding tubes, but he very rarely cries. He has a whole new set of tests to endure today.

Please pray, pray and then pray some more for this sweet, sweet little boy & his family. Jen is too tired & weak to make the trip to STL each day. David is tired from making the trip to STL each day and then taking care of Jen and Josiah. Mom arrived in MO yesterday to stay with & help with Jen & Jo so David can go see Kacyn each day. Again please pray. This family & this sweet little baby boy need a supernatural miracle from God. I can't even begin to thank everyone enough for the prayers & support, but I have to ask for the prayers to please continue!

Kacyn

Kacyn is still being kept at the Childrens Hospital. They have run numerous tests, but are still trying to determine what the real cause of his problems is.

They did a ct scan & determined that there has been no change in the spinal fluid buildup on his brain. It's still not putting any pressure on his brain.

His phena barb (sp?) level was high which would cause the sleepiness.

Since he hadn't eaten (or taken a bottle) since the day before arriving at the hospital, they put him immediately on an iv.

They attempted a lumbar puncture on Fri, but unable to draw any spinal fluid. They tried again on Sat & were successful that time. It'll be 48 hours before they have all the results from that & David didn't know exactly when the 48 hours ends.

The test results they've gotten back so far have indicated no infection. Everything is pointing to all of this being caused by something neurological.

Also keep Jennifer & David in your prayers. They are driving the hour back & forth to St Louis every day. Jennifer's also not feeling well due to her pneumonia & just overall tiredness which is worsened by the driving back & forth & pneumonia. Please pray for Kathy. She's staying at the Childrens Hospital with Kacyn. Bob has been staying home with Josiah, but had to leave to go back to OH. Please pray for a safe trip for him.

Rough Day

It's been a rough day for the Dierking family. I talked to David about an hour ago & he was making his 2nd trip to St. Louis today to take Kacyn to the Childrens Hospital. They were unable to get Kacyn to wake up today so he hasn't eaten all day, hasn't had a wet diaper since yesterday, & his body temp is at 93 degrees.

Jennifer has the beginning of pneumonia & has been put on antibiotics.

Please keep this little family in your prayers.

Thank you!
Lynn

EEG Results

Kacyn & Jennifer both had EEG's. Kacyn's didn't show any seizure activity, but it showed that it could happen at any time. David compared it to how you can tell it's getting ready to storm before it does. They put him on some seizure medication & he seems to be a little more alert & have better head control since being put on it. Jennifer's EEG showed no seizure activity which is what the drs really expected, but they wanted to do the EEG just to make sure.

Mom & Dad went to MO last Thu-Fri. Mom said Jennifer was very tired when they were there. They'd had another busy, busy week with 12 trips back & forth to St Louis. I would have been tired too! Mom & Dad brought Josiah home with them. He was going to stay a week here in AR, but Jen & David couldn't take it! They said it was just too quiet at home without him. They came down Monday to get him! They're going back to MO tomorrow morning.

David had an ultrasound to see if it was his gallbladder causing him problems & it showed everything was ok with his gallbladder.

I posted a pic of Kacyn's new chair! This makes him much more mobile & he really seems to like it. It's given a whole new view of the world!

Please continue to keep this little family in your prayers! God is working miracles in them!