Jennifer's Posting

Below is a posting directly from Jennifer. It's something she wants me to share with everyone.

A good friend of Jennifer's saw her in Tulsa several weeks ago. This friend was so taken aback & upset at seeing Jennifer like she is now that she couldn't sleep. She got up from bed & was praying for Jennifer when Jennifer's spirit appeared before her & said, "I'm still here, You're to see me as I really am. Tell David I love him. Thank him for not giving up on me and fighting for me. We win the fight, we have won the fight, with our God nothing is impossible."

Jennifer continues to improve with each day. The improvements are very subtle, but they are there. She may not be able to do everything yet, but her personality, sense of humor, smarts, are all there. She is the same Jennifer.

Kacyn got his new chair. He really likes it! It has a base for outdoors that comes off & can stay in the van & has another smaller base for in the house. It has great head support which is already making a big difference in helping to strengthen his neck. It also has a tray like a high chair that is removeable. He likes to play with toys on this tray.

Josiah got a new swing set which he is really enjoying! Our kids had outgrown their swing set so my husband took it apart. He & my brother drove it the 4 hours to Sullivan, MO, & put it up for Josiah. That made that little boy very happy! He was very excited!

I have posted a picture of Kacyn in his new chair & Josiah on his swing.

Please continue to pray for this little family. They've come a long ways, but still have a ways to go so they still need prayers.

Josiah's 3rd Birthday!

Josiah’s birthday was Aug 25. He turned 3. His birthday party was Sat, Aug 29. His party had an Imagination Movers theme. For those who don’t have small children & don’t know what Imagination Movers is, it’s a show on the Disney Channel that Josiah loves. Grammy made outfits for both Josiah & Kacyn just like the ones worn on the show. They looked so cute!! They had a good turnout for his birthday, about 50 people total (adults & children), & had a cookout. They also had a giant inflatable bounce house/castle that their church raised money to rent for them. The kids loved jumping & playing in it! A paramedic friend brought an ambulance by & let the go through it. Josiah truly deserved a special day to himself & that is what he got. Kacyn enjoyed the party too! He likes being outside. He loves looking around at everything & just coos & talks.

Kacyn continues to do well with his feeding tube. It took quite a few adjustments to his feeding schedule & a little time determining the amount of formula that was right for him, but Grammy’s got it all down now! She also feeds him by mouth daily to work on his swallowing & he’s doing pretty well with that also. Hopefully he won’t need the feeding tube much longer. Also I found out from Grammy today that he just got his 5th tooth! He’s such a sweet little baby.

Jennifer also continues to do well. The changes are very subtle, but I can see improvement each time I see her.

Thank you for all the prayers, support, & love. Please keep praying for complete healing for Jennifer & Kacyn. And don’t forget to pray for David & Grammy as they lovingly care for Jennifer, Josiah, & Kacyn.

Welcome Home, Kacyn!!

Kacyn was released from the Childrens Hospital yesterday. Josiah's been a little pistol since I've been here! He's so full of energy & into everything! Yesterday when it was just me & him here at home he was germ-free!! He got a small bottle of hand sanitizer & covered his arms, legs, & bed with it! We also have carpet now that won't get sunburned because he put sunscreen on it today!

David's dad had his surgery today. They only had to remove the right side of his thyroid. They said it looked benign. He's doing well. He said it feels like he has a really bad sore throat. He should be released tomorrow. Kathy didn't get to go back to OH for his surgery as originally planned since Kacyn didn't get released from the hospital until late yesterday. David's sister, Chrissie, is there with him though & has kept Kathy & all of his posted today.

Please continue to pray for miracles for Jennifer & Kacyn. Also please remember David. It never ceases to amaze me to see how well he cares for Jennifer, doing absolutely everything for her & dropping whatever's he's doing to do it without ever complaining. He sometimes teases her about it, but he never really complains. They argue over what to watch on tv. Jennifer used to always control the remote. Since she can't use it, David now has control, but he almost always gives in to what she wants to watch. He says it's nice to have control over the remote, but he'll be happy when she is able to take it back. Please continue to pray for strength, encouragement, & comfort for him. He has more stress in his life than the rest of us can even begin to imagine having. Please pray for Grammy as she continues to care for these precious little boys & for David's dad as he continues to recover from his surgery. Thank you & God bless!

In MO

I arrived at David & Jen's house yesterday afternoon to spend the week helping out. Kacyn is still in the Childrens Hospital. We went to see him after I got here. He is just the cutest & sweetest baby. I held him the whole time I was there.

They are now looking at possibly releasing him tomorrow. They are still working on getting his feedings straightened out. Grammy is still at the hospital with him. Hopefully they will both get to come home tomorrow.

Please continue to pray for Jen's complete healing as well as Kacyn's.

G Tube

Kacyn made it through his surgery with no problems. He was in quite a bit of pain last night & this morning. If you have children, you know that a pain cry is like no other. It can break your heart. They gave him some morphine this morning & he slept for quite awhile. Then seemed to feel a little better after that.

The plan is currently that he will be released tomorrow. And will have to go back in about a month to have surgery to put a shunt in.

I have posted a couple of new pics. One is of his G tube & the other is this afternoon & shows the modifications Grammy made to his clothing to accomodate the tube.

Please keep the prayers going for this precious little baby & his family!

Surgery

Kacyn is in surgery getting his G tube put in. He should be getting to go home this week. He'll have to be fed through the G tube & his body temp will have to be monitored closely since it still drops too low especially when he's sleeping.

Please keep the prayers flowing for this little boy & his family.

Still in the hospital

Kacyn is still in St Louis Childrens Hospital. They are hoping to get his G tube put in place & possibly send him home by the end of the week.

Grammy said he's been more awake today like normal for him with only a few naps here & there. Still having difficulty with swallowing which is the reason for the G tube & with his body temp.

Once his G tube site has healed completely, they will bring him back in about 1-2 weeks to put a shunt in.

Mom is back home now, but will be going back Wed-Thu. Then I'm going up this weekend to help out while Kathy goes back to OH for Bob's surgery.

I have posted another new picture of Kaycn & Josiah that was taken yesterday. Josiah is in Kacyn's hospital bed with him, watching tv. They're sooooo cute!!

Please keep Kacyn & Jen in your prayers. We need healing miracles for them. Please keep Bob in your prayers as he prepares for his surgery. Pray for Kathy, Mom, & myself as we drive back & forth. Pray for strength & comfort for the entire family. And last, but not least please pray for David. He is a remarkable person. The world would definitely be a much, much better place if more people were like him.